Keeping you updated
We now have a monthly Involvement bulletin sent via email to carers, which includes Learning Disability events and news as well as a newsletter which is produced twice a year. If you wish to receive this please contact us to confirm or provide your email address.
Have your say
The Involvement team hold regular meetings for carers. Some give carers the chance to hear from speakers who talk about particular services, others are a chance to discuss your experiences of health and social care – what is working well and what needs to improve.
We want to find out what topics you would like us to cover at these meetings or as part of our programme of workshops and events. For example, did you want to know any more about a particular financial or legal matter, health or wellbeing information, services for you as a carer or something related to caring for the person you look after?
If you are caring for someone with a physical or learning disability, an autism spectrum condition or aged up to 25 with a disability or complex health condition (s) we would be grateful if you could complete our short survey. The survey is at www.surveymonkey.co.uk/r/LZCDQKM and you have until Monday 17th July 2023 to take part.
News and Events
It is Learning Disability Week (#LDWeek) next week (19th – 25th June 2023) and we are holding a Mindfulness Session on Zoom for people caring for an adult family member, partner or friend with a learning disability. Join in with short breathing and meditation exercises and find out about different mindfulness techniques that can be used to manage stress. The session takes place on Thursday 22nd June 2023, 10.30am – 11.30am. Contact us to book a place or book via the listing on our events page. The week is co-ordinated by Mencap and you can learn more www.mencap.org.uk/LDWeek
Hertfordshire County Council is helping Hertfordshire residents with a learning or physical disability find a job or volunteering post through the Connected2Work project. You can find out more by calling 0300 123 4049 or visit www.hertfordshire.gov.uk/connected2work
You can now get extra pages for the Purple Folder
The Purple Folder is for adults with a learning disability to complete with support from their relatives, carers, or health or care professional working with them. It contains information about the person’s health and care needs and they can use the Purple Folder when they see doctors, opticians, pharmacists, or other health or social care workers.
The information in it helps people ensure they give the person with the learning disability the care and treatment best for them. For more information about the Purple Folder call Hertfordshire County Council’s Health Liaison Team on 01438 845372. They are open Monday to Friday 9am – 5pm.
If you or someone you know with a Purple Folder needs more pages you can download and print them from Hertfordshire County Council’s website via this link – Purple Folder Extra Pages.
Hertfordshire County Council is making information more accessible for people with a learning disability
Hertfordshire County Council have developed a website for people with a learning disability (and their carers) that gives information to help with their health. The website can be accessed using the link http://www.hertfordshire.gov.uk/LDmyhealth
The website currently includes:
• Easy-read leaflets regarding Community Learning Disability Nursing, Health Liaison Team, and Specialist Epilepsy Nurses (useful for when discussing a possible referral with someone).
• Information regarding Annual Health Checks with printable documents: Carers Preparation Tool and Easy Read Checklist.
• Information regarding Purple Folders with printable easy-read information. Provides contact details to get a purple folder and extra pages.
• List of Purple Star Services in Hertfordshire. (The Purple Star is a quality kite mark and is offered to all health providers who are willing to review their service, to undertake training and improvements to provide a reasonably adjusted, equitable service for people with a learning disability).
• A ‘How to Stay Healthy’ section that has printable easy read health information: breast monitoring, testicle monitoring, and constipation monitoring.
The website continues to be reviewed and updated regularly.