Pat’s Story

Pat supports two family members – her youngest son, who is 34 and has Asperger’s and learning difficulties, and her husband, who has had multiple strokes.

“Currently, my main caring role is supporting my husband, who has had four strokes since 2009 – the latest and worst in 2021. They have left him with limited mobility, difficulty following instructions, forgetfulness, and seizures.

My son experiences a lot of fatigue and sleeps a lot, but he helps me around the house with cleaning and other chores when able.

A typical day varies, but I look after the house, prepare lunch and dinner – my husband and son can make their own breakfast and drinks – and I ensure any medication has been taken. I also keep on top of appointments and paperwork. Caring is a journey, it can be a long road with many changes along the way.

I first contacted Carers in Hertfordshire in 2017 at my GP’s suggestion. I spoke to a Carer Support Advisor as I was keen to find out about any help available to me and my family. Following the conversation I secured a blue badge, which has been useful when going out with my husband.

Earlier last year (2024) I got back in touch as I wanted to plan for the future, particularly for if I couldn’t provide care. I didn’t know where to start so thought I’d turn to the experts at Carers in Hertfordshire.

An Advisor took time to listen to me and helped me make a plan. They referred me for a Carer’s Assessment and my husband for a review of his needs. Following this, my husband was awarded Attendance Allowance, which we are using towards a cleaner, which takes some of the pressure off of me.

I’ve also found out about support and organisations that could help in the future, such as key safes and care companies.

I’m grateful for the advice you have provided me. You help carers like me realise we are not alone, there’s a community ready to assist.”