Gillian’s Story

Gillian, 71, from Watford, supports an adult daughter who has severe learning disabilities, cerebral palsy, autism and is partially deaf. She has been caring for her for over 40 years. Her daughter lives in a supported living community as she is unable to live independently. Here she talks about her caring role and how Carers in Hertfordshire has helped her.

“I visit my daughter every other week, and I try and take her on holiday twice a year so we can spend quality time together. My main role is being her biggest advocate, making sure she always receives the care and support she needs.

I first came into contact with Carers in Hertfordshire thanks to a chance conversation with a neighbour. We don’t know each other very well, but we were in the lift together one day and she mentioned her Carers in Hertfordshire Carers’ Passport, an ID card that provides access to savings and offers in a range of businesses. She encouraged me to register, and that small interaction made a big difference.

At the time, I didn’t really see myself as a carer because I don’t live with my daughter. Even while filling in the registration forms, I still felt unsure. But Carers in Hertfordshire reassured me that I was a carer, and in the last year I have finally recognised this.

I have gained valuable knowledge through events, such as understanding the importance of registering as a carer with my GP. I’ve also attended the hub meetings, where I’ve met other carers and found a real sense of connection – we’re able to support and learn from each other.

I’ve even had the opportunity to give something back by becoming a Carer Trainer, helping to shape services for others in similar situations. That’s been incredibly rewarding. But the biggest impact of the support I’ve received is that I feel valued.”

Gillian’s heartfelt advice to other carers is simple: “Don’t be afraid to speak up!”