We believe we make a difference by working together. The involvement of carers is very much needed:
- To give carers a real say in what services are working well and how they are delivered
- To ensure planners and managers hear about services which are not effective or supportive
- To ensure services respect people's dignity and independence
- To ensure carers get the help and advice they need when they need it
- To influence the development of new and better services.
What do we do
Involvement Workers will:
- Provide you with the training and support you may need to help you represent your views and those of other carers to the health and social care authorities who commission services in Hertfordshire
- Give you the opportunity to meet and talk to other carers who have had similar experiences to your own
- Hold a Carers' Forum, which meets regularly to share information and concerns and to agree responses to proposals for changes to health services. There are a number of regular meetings and events where carers' views are welcomed and where we have the opportunity to influence service developments. Due to the coronavirus our forums are taking place online via Zoom at present.
- Keep you updated about issues related to services for people with Dementia in Hertfordshire and caring. Our newsletter for carers of someone with Dementia is produced twice a year and you can download the latest copy - Dementia Carers' Newsletter (Spring & Summer 2020) below or via the link - Dementia Carers' Newsletter Spring & Summer 2020 In October 2020 we produced our first newsletter for carers of older people and this can be viewed via the link - Newsletter for Carers of Older People (October 2020).
How you can be involved
Come along to one of our Dementia Carers' Forums or Carers of Older People Forums. They are friendly, relaxed meetings where you can have your say about the services that you receive or may receive in the future. For those carers who are unable to attend regular meetings, we organise a Carers' Involvement Network where you can tell us about your experiences of services by email, telephone conversations, responding to surveys or attending one-off workshops.
Our Dementia Forums represents carers' voices at various meetings including Hertfordshire's Dementia Co-production Board. They include both carers of looking after someone with Dementia and Young Onset Dementia.
Our Carers of Older People Forums represent carers' views to Hertfordshire's Older People's Co-production Board.
If you have something to share or would like to get involved, please call 01992 58 69 69 or email me.
Other Organisations and Useful Links
The Alzheimer’s Society in Hertfordshire provide face to face and telephone support for people at any stage of their Dementia. They offer emotional and practical support around the diagnosis, support you to plan for the future and live well with the diagnosis. Support in Hertfordshire is accessible by calling 01707 378365. Nationally they run the Dementia Connect Support Line which you can call on 0333 150 3456.
Hertswise is a partnership organisation that supports people living with Dementia, Young Onset Dementia, low level memory loss or mild cognitive impairment and their carers. It provides information and advice, activities and support via Dementia hubs, Young Onset groups, carers support groups and training, and 1:1 support. Hertswise can be contacted through HertsHelp (0300 123 4044).
We are currently running drop-in sessions and groups for people in Hertfordshire caring for someone with dementia online over Zoom. Details are below, if you would like to join in with them please call 0300 345 3446. There are drop-ins where you can link up with other carers on the second Monday of each month, 10.30am – 11.30am, and fourth Tuesday of each month, 1.30pm – 2.30pm, plus the following area based groups.
Bishop’s Stortford: fourth Thursday of the month, 1.30pm-2.30pm
Cheshunt: second Wednesday of the month, 1.30pm-2.30pm.
Hertford: second Friday of the month, 1.30pm-2.30pm.
Letchworth Garden City: first Friday of the month, 1.30pm-2.30pm.
Ware: third Friday of the month, 1.30pm-2.30pm.
Watford and West Herts: first Wednesday of the month, 1.30pm-2.30pm.
Admiral nurses are specialist Dementia nurses who work with carers and their families that are at risk of crisis. Call Carers in Hertfordshire on 01992 58 69 69 to find out more or be referred.
The Hertfordshire Partnership University NHS Foundation Trust Older People’s Mental Health Team is made up of people with specialist skills that can provide support through community teams, crisis functions, therapy functions and the Early Memory Diagnosis and Support Service (EMDASS). You can call their Single Point of Access on
0300 777 0707.
Age UK Hertfordshire offers various services to those with Dementia and their carers, including information and advice, nutritional and diabetic service, help in the home and keeping in touch. The Hertfordshire office is available by telephone on 01707 323 272 and the national number is 0300 345 3446.
If you are worried about your memory or the memory of someone you know then please visit your GP and discuss the options and support available to you.
Involvement Worker Dementia and Older People